Papers: RELIGIOUS AND SPIRITUALITY VALUES AND COPING ON HIV


RELIGIOUS AND SPIRITUALITY VALUES AND COPING ON HIV

1.      Title: Religion and HIV: a review of the literature and clinical implications
Author(s): Kenneth I. Pargament, Shauna McCarthy, Purvi Shah, Gene Ano, Nalini Tarakeshwar, Amy Wachholtz, .
Source: Southern Medical Journal.
Document Type: Article
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Despite substantive research documenting the connection between various religious dimensions and physical (1,2) and mental health, (3) surprisingly little attention has been given to the study of religion among individuals with the human immunodeficiency virus (HIV). Although initially considered to be a white, "gay man's" disease, today women and ethnic minorities are subgroups that are the most severely affected by the HIV pandemic. (4) Importantly, these disenfranchised subgroups report greater use of religion in their everyday lives. (5) A small but growing number of studies conducted mostly within the past few years have recognized the importance of religion in the lives of individuals with HIV. (6-9)
In particular, research has noted the frequent use of religious coping by men and women with HIV to deal with the loss of their loved ones to AIDS, (10,11) to overcome their sense of guilt and shame in engaging in risky behaviors, (8) and to find a renewed sense of purpose in life. (13-16) However, clinical interventions with persons with HIV have largely neglected religiousness and spirituality as resources for treatment and, to date, few spirituality-based interventions exist that can be empirically evaluated. (17) In this paper, we review the literature on religious coping among individuals with HIV and outline a clinical intervention that incorporates religious issues relevant to this population. We first provide an overview of religious coping.
Framework of Religious Coping
Pargament (18) has developed a transactional model of religious coping wherein religion is viewed as contributing to the coping process by shaping the character of life events, coping activities, and the outcomes of events. Religion can also be a product of coping such that people can increase their religious faith as a result of life events. As part of an individual's general orienting system, religion influences how individuals appraise situations, participate in activities, and develop goals for themselves. In particular, when faced with difficult situations, individuals have reported using a wide variety of religious coping methods, such as benevolent religious appraisals, seeking support from clergy or church members, seeking spiritual support, discontent with congregation and God, negative religious reframing, and expressing interpersonal religious discontent. (18) One parsimonious way of clustering or distinguishing these various coping methods is to define "positive religious coping" strategies (eg, seeking God's love and care, asking for forgiveness) and "negative religious coping" strategies (eg, expressing anger at God, feeling punished by God). (19) Positive religious coping methods rest on a secure relationship with God, a belief in a larger, benevolent purpose to life, and a sense of connectedness with a religious community. Negative religious coping methods reflect a religious struggle that grows out of a more tenuous relationship with God, a more ominous view of life, and a sense of disconnectedness with a religious community. In some sense, negative religious coping occurs when major life stressors pose a threat or challenge not only to physical and psychological health and well-being but also to the individual's religious and spiritual world view.

2.      Spirituality and psychosocial factors in persons living with HIV


First published: 07 July 2008


Cited by: 106
 Inez Tuck, School of Nursing, Virginia Commonwealth University, 1220 East Broad Street, Richmond, VA 23298‐0567, USA. E‐mail: ituck@hsc.vcu.edu
Abstract
Spirituality and psychosocial factors in persons living with HIV
Aim of the study. This pilot study was designed to examine the relationships among spirituality and psychosocial factors in a sample of 52 adult males living with human immunodeficiency virus (HIV) disease and to determine the most reliable spirituality measure for a proposed longitudinal study.
Background. HIV disease is among the most devastating of illnesses, having multiple and profound effects upon all aspects of the biopsychosocial and spiritual being. Although research has suggested relationships among various psychosocial and spiritual factors, symptomatology and physical health, much more research is needed to document their potential influences on immune function, as well as health status, disease progression, and quality of life among persons with HIV disease.
Methods. This descriptive correlational study explored the relationships of spirituality and psychosocial measures. Spirituality was measured in terms of spiritual perspective, well‐being and health using three tools: the Spiritual Perspective Scale, the Spiritual Well‐Being Scale, and the Spiritual Health Inventory. Five psychosocial instruments were used to measure aspects of stress and coping: the Mishel Uncertainty in Illness Scale, Dealing with Illness Scale, Social Provisions Scale, Impact of Events Scale, and Functional Assessment of HIV Infection Scale. The sample was recruited as part of an ongoing funded study. The procedures from the larger study were well‐defined and followed in this pilot study. Correlational analyses were done to determine the relationship between spirituality and the psychosocial measures.
Findings. The findings indicate that spirituality as measured by the existential well‐being (EWB) subscale of the Spiritual Well‐Being Scale was positively related to quality of life, social support, effective coping strategies and negatively related to perceived stress, uncertainty, psychological distress and emotional‐focused coping. The other spirituality measures had less significant or non significant relationships with the psychological measures.
Conclusions. The study findings support the inclusion of spirituality as a variable for consideration when examining the psychosocial factors and the quality of life of persons living with HIV disease. The spiritual measure that best captures these relationships is the EWB subscale of the Spiritual Well‐Being Scale.

3.      A Critical Review of a Spirituality Intervention

First Published February 6, 2012 Research Article 
 Abstract
Although there is a growing interest in the topic of spirituality, there are few reports of spiritual interventions and limited empirical data to support their effectiveness. As health care practices become increasingly evidence based, the reliance on empirical data is critical. This article describes the spiritual intervention developed by the author and documents the testing of its effectiveness with clinical and nonclinical populations. The findings from a series of studies have been mixed. Preliminary studies reported that the intervention positively influenced patients’ outcomes, including overall quality of life and reduced selected stress responses. Significant positive trends were found that supported the potential effectiveness of the intervention for a variety of populations and clinical settings. However, subsequent testing in clinical trials indicated limited effect of the intervention although there were several noteworthy findings. The author discusses the implications of these findings for future investigations.

4.      Do Positive Psychosocial Factors Predict Disease Progression in HIV-1? A Review of the Evidence

The publisher's final edited version of this article is available at Psychosom Med
See other articles in PMC that cite the published article.
Adding to a traditional stress perspective, behavioral medicine has been focusing increasingly on investigating the potential impact of positive psychosocial factors on disease course in HIV. Dispositional optimism, active coping, and spirituality show the most evidence for predicting slower disease progression, although the data are not entirely consistent. Findings for the role of social support are mixed, although indications are that it may be particularly helpful at later stages of illness. Many of the other constructs (positive affect, finding meaning, emotional expression/processing, openness, extraversion, conscientiousness, altruism, and self-efficacy) have only been examined in one or two studies; results are preliminary but suggestive of protective effects. Plausible behavioral and biological mechanisms are discussed (including health behaviors, neurohormones, and immune measures) as well as suggestions for clinicians, limitations, future directions, and a discussion of whether these constructs can be changed. In conclusion, investigating the importance and usefulness of positive psychosocial factors in predicting disease progression in HIV is in its beginning scientific stages and shows good initial evidence and future promise.

Abstract
Adding to a traditional stress perspective, behavioral medicine has been focusing increasingly on investigating the potential impact of positive psychosocial factors on disease course in HIV. Dispositional optimism, active coping, and spirituality show the most evidence for predicting slower disease progression, although the data are not entirely consistent. Findings for the role of social support are mixed, although indications are that it may be particularly helpful at later stages of illness. Many of the other constructs (positive affect, finding meaning, emotional expression/processing, openness, extraversion, conscientiousness, altruism, and self-efficacy) have only been examined in one or two studies; results are preliminary but suggestive of protective effects. Plausible behavioral and biological mechanisms are discussed (including health behaviors, neurohormones, and immune measures) as well as suggestions for clinicians, limitations, future directions, and a discussion of whether these constructs can be changed. In conclusion, investigating the importance and usefulness of positive psychosocial factors in predicting disease progression in HIV is in its beginning scientific stages and shows good initial evidence and future promise.
Keywords: opitimism, coping, spirituality, positive psychology, meaning, HIV/AIDS, disease progression

INTRODUCTION

Despite the widespread popularity of books such as the “Power of Positive Thinking” (), the research on psychosocial predictors in behavioral medicine has been focused on the negative predictors of disease outcomes such as stressful life events, depression, and avoidant coping (,). The field of behavioral medicine is now expanding to incorporate a new focus on positive factors that may contribute to health outcomes (). This paper reviews what is known about these positive psychosocial factors and their relationship to longitudinal studies of disease progression in HIV. We define positive psychosocial factors broadly to include such diverse potentially helpful constructs as beliefs (optimism, finding meaning, spirituality), positive affect, behaviors (active coping, altruistic behaviors, expressing emotions with processing), personality dispositions (openness, extra-version, conscientiousness), and social support. Our coverage includes many of the commonly used constructs that are part of the positive psychology literature (). To ensure a comprehensive review, we searched on the following keywords in PubMed: HIV and disease progression crossed with optimism, positive affect, coping, spirituality, meaning, personality, altruism, emotional expression, and social support.
CONCLUSION

CONCLUSIONS

Investigating the importance and usefulness of positive psychosocial factors is in its beginning scientific stages and shows good initial evidence and future promise. Positive psychosocial factors such as positive beliefs (optimism, finding meaning, spirituality), positive affect, positive behaviors (expressing/processing emotions, proactive coping, adherence, etc.), active ways of interacting (openness, extraversion), and fostering social support can help a person with HIV to cope and to remain engaged in living. Although recognizing and encouraging a positive attitude in patients could be helpful, healthcare professionals must be mindful of potential pitfalls and proceed with sensitivity. Directing the conversation toward more specific approaches for enhancing positive ways of dealing with HIV (e.g., finding meaning, increasing spirituality, providing skills for increasing self-efficacy) may be useful and easier to implement. Future longitudinal studies should cast a wider net to include positive constructs not yet investigated, and should do so with conceptual clarity. Future intervention studies are needed to determine whether focusing on positive states will enhance effectiveness beyond what is already achieved.


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